Race Day Update!

Donations:

We're two weeks out from our race for Landau-Kleffner Syndrome and I'm really excited to report that we've raised just over $2000 in honor of Braden Peiffer and LKS!  All the proceeds go to research specifically for LKS.  We had one donation in the amount of $1,000 from an extremely generous donor.  As the donations come in I'm realizing what an amazing journey this has been, I've met and spoken to some incredible people and I thank you from the bottom of my heart for making this entire experience extremely special.

Race Day:

Many of you have asked about the route and other race day details.  I've attached a map of the race route, we'll be starting on the Prairie Path Trail (http://www.ipp.org/pdf/IPP-free-map-color.pdf) on the Aurora Branch which will feed into the main brain branch.  We'll be taking that to where the trail ends in Maywood on 1st Avenue.  From 1st Avenue we'll be heading over to Madison and head North on Harlem.  From Harlem we'll go to Lake Street and from there we'll be running straight to Buckingham Fountain for a total of 31.1 miles: (http://runkeeper.com/user/MollyMcForsythe/route/2028678)

We're planning on starting at 6am and because I run slow we're estimating a finish time between 1-2pm.  I'm welcoming anyone to cheer us on or run a part of the race with us. The more the merrier!  And because this an unofficial race we're just going to have fun, not feel any pressure and enjoy the journey.  Family, friends, and supporters are joining us for the last mile of the race - they'll be helping us with hardest part of it!  We'll also be joined on the last mile by Courtney Anderson who has fully recovered from this disease - a true inspiration!

On May 11th, 2013 Darcy Lawler (Braden's Aunt), Amanda Collins, Dusty Hardman (running from her home state of FL), Terri Preast (running from her home state of TN),  are running 31.1 miles in honor of Braden Peiffer and LKS and we're going to run our hearts out!

Donations are still being taken in honor of Braden Peiffer:

https://www.rarediseases.org/about/support/donate/fg_base_view_p3

https://globalgenes.org/give/

With just a few weeks left before my 50k run for Braden Peiffer who has Landau-Kleffner Syndrome I find myself getting tired, overwhelmed and look for inspiration to get me through my long runs.  Braden is always in the back of my mind, his struggles keep me going because at the end of the day my struggles w/ running are over when I'm done running.  Braden, his parents and brother continue to struggle with no end in sight.  

Can you imagine living your life that way every single day?  Clearly Braden, his mom and dad and brother all carry on with the belief that some day things will be better.  I believe this too, which is why I'm running for Braden and others affected by LKS.  I've submitted this race and Braden's story to CNN I-Report:  http://ireport.cnn.com/docs/DOC-930698 and 348 people have recommended this article.  Because of CNN I've been contacted by Courtney Anderson, now a 26 year old adult, who has over come LKS and wants to run with us!  Her story is an important one, it proves that the hope the Peiffer's carry with them is justified.

On May 11th, 2013 I'm running 31.1 miles along with Darcy Lawler (Braden's Aunt), Amanda Collins, Dusty Hardman (from her home state of FL) and Terri Preast (from her home state of TN), Courtney Anderson (IL) and we're all going to run our hearts out!

To donate to rare diseases in Braden Peiffer's honor:

https://globalgenes.org/give/

https://www.rarediseases.org/about/support/donate/fg_base_view_p3

http://lksrun50k.blogspot.com

https://www.facebook.com/molly.m.forsythe?ref=tn_tnmn

We made it to CNN I-Report!

My race for Braden and his struggle with the rare disease Landau-Kleffner Syndrome is just over a month away and I could not be more excited that this story is now on CNN I-Report!  So far it's been recommended by 95 people, not bad for such a small operation.

I'm hoping you'll take a look at the below link and "recommend", "like" and "share" this story.  Awareness is the first step to getting this disease the much needed research and hopefully some day a cure:

http://ireport.cnn.com/docs/DOC-930698

On May 11th I'm running 31.1 miles for Braden Peiffer who suffers from LKS and joining me are his aunt Darcy Lawler, Amanda Collins, Dusty Hardman (from her home state of FL) and Terri Preast (from her home state of TN) and we're going to run our hearts out!!!

If you still like to donate you can in honor of Braden Peiffer to the following:

https://globalgenes.org/give/

https://www.rarediseases.org/about/support/donate/fg_base_view_p3