Wednesday, March 20, 2013



I have shin splints - I'm so bummed out about this but I'm trying really hard to keep my head up, let the leg heal and stay positive that I will be running 31.1 miles on May 11th for Landau-Kleffner Syndrome and Braden.  I did run a half marathon recently and towards the end of my race there was a sign that said "Don't Give Up" - I tell my kids this all the time, so I had to take a picture of it.  I'm glad I have this photo because when I got the news of shin splints, I was more than frustrated!  I'm sure there are times where we've all felt like giving up.  The thing is, with rare diseases you can't just give up.  You have no choice but to put one foot in front of the other and keep going (just like running a race).  The hope is that some day you will be well, live a full life, enjoy the simple things us common folk take for granted.  It's just too big a gift to pass up, giving up is not an option!

On May 11th, Darcy Lawler, Amanda Collins, Dusty Hardman (from her home state of FLA), Terri Preast (from her home state of TN) and me are all going to run 31.1 miles in honor of Braden Peiffer who suffers from Landau-Kleffner Syndrome and we're going to run our hearts out!