I run because I love to run and many things inspire me to run. But what inspires me to run every single time I run? The fact that I CAN RUN. Over two years ago I couldn't walk a block and forget running! I'm so fortunate that I have medicine that I take that helps me function like a normal human being. Don't get me wrong, I still have my bad days here and there but I can cope so much better with the medicine.
Lately when I've been running I try think about what it would be like to have this "skill" taken away from me again. It makes me sad think about this. My thoughts always turn to Braden and his struggle with Landau-Kleffner Syndrome. He was born with language and the ability to use it and understand and slowly this is being taken away from him. He's literally being robbed of a skill that enables him to participate in life just like we do: sing songs, play games with his friends, learn at school, etc. I can't imagine how frustrating this must be for him to wake up and want to say something but not being able to get the words out.
Imagine the worry and the stress his mother, father and the rest of his family experience on behalf of Braden. We all want the best for our loved ones and I know Kris and Mark Peiffer desperately want the burden of this disease taken away so Braden can just enjoy parts of life we all take for granted. I think they've done an amazing job, I look at Braden's picture posted here and the smile on his face says what amazing parents they are! You can tell they take all the fear, stress and anxiety out of the equation for Braden and make life as easy as possible for him. That is an amazing gift.
So when I run and I get tired I think of the Peiffer's and they inspire me to keep going because that's what they do every single day despite how difficult their day may be...I hope you all are inspired as I am by this story:
https://globalgenes.org/give/
https://www.rarediseases.org/about/support/donate/fg_base_view_p3
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